Consumer Bites

The newsletter of the Health Care Consumers’ Association Inc.
 Issue 19 / 19 October 2026

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Message from the Executive Director

I had the privilege of reviewing this year’s nominations for the ACT Safety and Quality in Health Care Awards as a member of the Judging panel. There was some real dedication, innovation and commitment to improving safety and care demonstrated across our health system.

It was a pleasure to attend the awards ceremony on 17 September and celebrate the individuals and teams who work to improve safety and quality for people in the ACT. I was also proud to join the Walk for Patient Safety, 

which brought together health professionals, consumers and community members in a shared commitment to safer health care. Congratulations to all nominees and award winners for their important contributions and leadership in improving health outcomes for our community.

Caption: Lachlan Atyeo at the ACT Safety and Quality in Health Care Awards and Walk for Patient Safety

You have now hopefully received your invitation to HCCA's Annual General Meeting (AGM) on 18 November 2026. It is a great opportunity to hear about HCCA's achievements over the past year and connect with fellow members. We look forward to seeing you there. If you haven't already, please remember to register by the relevant RSVP date.

Lachlan Atyeo
Executive Director

 

In this Issue

  • Upcoming HCCA events
  • Health Literacy Update
  • Quality Use of Medicines (QUM) Update
  • Policy and Research Update
  • Members Update
  • Members Spotlight
  • Items of Interest
 

Upcoming HCCA Events

Skills for Digital Health Literacy

Thursday 22 October, 2pm – 3:30pm

Online via Zoom

Hear from literacy researchers, Saffron Howden and Dr Julie Ayre, about the skills and knowledge you need to check health claims from news, social media and AI in 2026's digital landscape.

Learn more and register on Humanitix
Training: Supporting consumer health literacy

Monday 26 October, 12pm - 1:30pm

Online via Zoom

This free training presented by HCCA’s Health Literacy Officer and Multicultural Liaison Officer will teach you how community and health workers can help consumers build their health literacy to get better health outcomes.

Learn more and register on Humanitix
Free Mental Wellbeing Peer Support Group

Every Thursday 2pm – 4pm @ Chifley Health & Wellbeing Hub

Come join Grow ACT's new free Mental Wellbeing Peer Support Group at Chifley!

If you're living with a chronic health condition or simply looking for a welcoming space to connect with others, this ongoing peer support group offers a safe and confidential place to share experiences and support your mental wellbeing.

Advance Care Planning Appointments

3rd Tuesday of the month, 12:30pm-6pm @ Chifley Health & Wellbeing Hub

Making an Advance Care Plan means your loved ones and health care team will know your wishes if you can't speak for yourself. Book in for 1-on-1 support to write your plan with Canberra Health Services.

 

Updates from the Office

Consumer Participation Update

Health Literacy Update

Last week, HCCA had a very busy stall at the COTA ACT Seniors and Better Ageing Expo. We spoke to over 300 people over 2 days and shared hundreds of resources with the community! The most popular HCCA resources were:

  • Finding the right health service
  • Staying Safe in Hospital
  • Trusted health websites
  • Foldable medicine list template
  • Do I still need my antidepressant: 5 questions to ask your health professional

Many people told us they liked how practical the resources are and that it was helpful to get hard copies to put on their fridge or share with others. If you want to grab a hard copy of any of these resources, they are available at the HCCA office.

Caption: Jessica Lamb and Ivapene Seiuli at the COTA ACT Seniors and Better Ageing Expo

— the Health Literacy team
(C and Ivapene)

Quality Use of Medicines (QUM) Update

The research and design work for our topic, Osteoporosis (secondary fracture prevention) was recently completed. We are now working with our partner Healthy Bones Australia on developing some of the initial program resources. Once the resources are ready, we will share links in Consumer Bites. Our first osteoporosis resources, along with all our other QUM topics, will be available soon on the QUM website. 

— the QUM team
(Kathryn, Nadia and Darcy)

Policy and Research Update

Have you heard about the work of Health ANSWERS (Health in ACT and NSW Education, Research and Service)? Health ANSWERS is a collaborative partnership whose work covers primary care, hospitals, ambulance services and community health. It brings research into everyday health care and helps services work together. Health ANSWERS aims to improve health care, support health workers, and make sure people in regional communities can access high-quality care when they need it.

Research Officer, Scott Sharpe works with Health ANSWERS on behalf of HCCA and will be attending their local Multidisciplinary Roundtable for Older Persons' Health Research in October 2026.

Health ANSWERS are keen for consumers and carers to be more involved in their activities, including the Roundtable.

Health ANSWERS Multidisciplinary Roundtable for Older Persons' Health 2026 - Seeking Consumer Panellists and Questions

Roundtable details:

  • Date: 15 October 2026
  • Time: 1 hour between 1:00pm and 4:30pm (we will confirm your exact stage time closer to the event)
  • Location: Amberfield by LDK, 240 Cotter Rd, Weston ACT 2611, Australia

There are two ways consumers and carers can participate in the Roundtable:

  • as a Consumer Panellist
  • by submitting your questions.

Joining the Consumer Panel:

Health ANSWERS are bringing together 5 consumers and carers alongside 5 researchers for a 60-minute panel conversation about what good partnership between researchers and older consumers looks like. They want to hear honest experiences – what works, what does not, and your thoughts and ideas on how these partnerships can be more effective.

Health ANSWERS are seeking older consumers or their carers who have some experience with or interest in health research. Maybe you have been part of a research project, sat on a committee, or helped shape a study. Do you have ideas about what good consumer-researcher partnership looks like?
As a panellist, you will get a $135 gift card, afternoon tea, and a briefing online via Teams beforehand, so you know what to expect.

Download this document for more information and instructions on how to submit your expression of interest.

Submitting your questions:

Do you have questions to ask about consumers and health researchers working together?

Find out more about submitting your questions and how you can learn the answers through this document.

Consumer Survey for Women's Health Care

We want to hear about people’s experience of women’s health care in the ACT, and what they believe best-practice women's health care should look like. We have an anonymous survey open to collect consumer feedback to inform our submission to the Australian Parliament's Select Committee on Women's Health.

We use the term ‘women’s health care’ to describe various services and health issues listed below. But we know that many of these areas of health care are relevant to people from a range of gender identities and sex characteristics. We therefore welcome responses from anyone with lived experience of these health services, including people who are transgender, intersex, non-binary and gender diverse.

The questions in this survey refer to ‘women’s health care’ which can include any of the below listed areas. You can provide feedback on your experience of any, or all, of these topics.

  • Physical and mental health support and services
  • Pregnancy and postpartum care
  • Reproductive health care
  • Care and treatment for pelvic pain and pelvic health conditions
  • Fertility and assisted reproductive health care
  • The use of medical devices (i.e. pelvic mesh, IUDs, Implanon, Femtech fertility tracking / IVF software apps)
  • Perimenopause and menopause support
  • Any other women’s health care areas important to you

We are interested in both positive and negative experiences. You do not need to have had a particular health condition or experience to participate.

You can fill the survey through this linked Microsoft form. 

— the Policy and Research team
(Jess, Scott, and Fiona)

Members Update

Celebrating safer and better health care in the ACT

We were pleased to attend the ACT Safety and Quality in Health Care Awards 2026 event on 17 September at Canberra Hospital, recognising the people and initiatives contributing to safer, higher-quality and more inclusive health care across our community.

The event was held in conjunction with World Patient Safety Day and the Walk for Patient Safety — bringing people together around a shared commitment to safer care.

It was valuable to:

  • hear about work improving patient safety and quality
  • recognise contributions being made across the ACT health system
  • connect with health professionals, consumers and community representatives
  • reinforce the importance of consumer voices, inclusion and partnership in shaping better health outcomes

Thank you to ACT Health and the Office of the Chief Medical Officer for bringing everyone together and continuing to strengthen a culture of safety and quality across our health system.

Caption: Executive Director Lachlan Atyeo, President Linda Trompf and Executive Committee Member Ravi Krishnamurthy at the ACT Safety and Quality in Health Care Awards 2026 and the Walk for Patient Safety

— Ravi Krishnamurthy

 

Members Spotlight

Bob Stirling

Bob Stirling has always regarded 9 as his lucky number. He and other family members were born in September and he adopted the month as his special number. It felt like an omen when his heart bypass surgery fell on 9 September 2009 (09/09/09). His hospital bed for the surgery was number 9, and his surgeon later told him the first incision was made at 9:09am. Seventeen years later, on 9 September 2026, Bob reflected on his journey and the difference peer support can make. 

Bob joined HCCA in 2017 because he believed patients need support more than anything else. 

“There are a lot of things patients aren’t aware of, and they need somebody to back them up,” he says.

Although he completed consumer representative training with HCCA, his growing involvement with Heart Support Australia soon became his primary focus.  

After his surgery, Bob felt there were important things nobody had told him about, including the emotional and psychological impacts of recovery. Looking for support, he joined Heart Support Australia in 2010 and eventually became a Hospital Patient Visitor, providing bedside peer support to people with heart disease and those recovering from heart surgery. 

Over the years, Bob helped expand the hospital visitor program, trained new volunteers and served as National Hospital Patient Visitor Instructor. He is also the Peer Support Group Leader for Canberra. Some of the people he meets at the bedside later join his peer support group, where they can connect with others who understand what they are going through. HCCA has also supported the group by providing health literacy sessions on Advance Care Planning, which were very well received by participants. 

“Peer support groups are a safe place for heart patients to talk about whatever they want and get their questions answered”, he says. 

Bob recalls a nurse thanking him for “doing what we can’t do” because he could share insights from his own lived experience of heart surgery. Through hospital visits, cardiac rehabilitation talks and peer support groups, Bob helps fill information gaps, answer practical questions and reassure patients and their families. 

For Bob, this work closely aligns with HCCA’s mission. “People need to know there is help out there and that they’re entitled to have their questions answered,” he says.  

“Don’t struggle alone. Reach out, ask questions and talk to someone who understands. Sometimes, that conversation can make all the difference”, he says.

 

Items of Interest

National Carers Week 

National Carers Week is from 11–17 October 2026. This day recognises, celebrates and raises awareness of the more than 3 million Australians who provide unpaid care to a family member or friend. The 2026 theme is “Care for a carer: Making carers visible”. To learn more, please visit the Carers Week website.

SCADaddle for Research

Join Canberra’s SCADaddle for Research, a 5km fundraising walk on Sunday 25 October 2026. This event aims to raise funds for Australian research into SCAD (Spontaneous Coronary Artery Dissection). During SCAD, a sudden tear occurs within the layers of one or more arteries to the heart. This tear blocks blood flow, which can lead to heart attack, cardiac arrest and sometimes death. The average age of people affected by SCAD is just 42, and around 80% are women. To learn more, please visit the SCAD Research website.

Voices of In-sight workshop 

Roses in the Ocean is holding the 'The Voices of In-Sight' workshop in the ACT on 29 & 30 October. The workshop is for people with a lived experience of suicide who want to contribute to suicide prevention in some way.

The Voices of In-sight workshop is a highly reflective, facilitated process where you get the gift of time - time to reflect on and explore your own story, time to connect with others who have walked in similar shoes, time to hear different perspectives of suicide, and time to develop a structured, impactful message.  

To learn more about this workshop, please go to the Roses in the Ocean website.

Sign up to the in-person workshop through this linked Microsoft Form. 

Webinar on Healthcare Meets AI: What It Means for You

Join Health Consumers Queensland on the 7th of October 12pm, for this practical webinar on how AI is being used in healthcare, the potential benefits and risks, and the questions consumers should be asking as these technologies become part of everyday care.

To sign up please go to the Health Consumers Queensland website.

 
 
 

Give us Your Feedback

What did you think of this issue? Give us your feedback through this linked microsoft form.

Would you like to chat about any of these things? Please email us at [email protected] for your feedback. We would love to hear from you!

 
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**FREE interpreter services available over the phone via the Australian Government’s Translation and Interpreting Service (TIS) on 131 450**

© 2026 Health Care Consumers' Association Inc, All rights reserved. Edited by Lachlan Atyeo.

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Consumer Bites is the newsletter of the Health Care Consumers' Association. Consumer Bites provides a small snippet of health related articles our members might find interesting to consider and analyse. The HCCA does not endorse any opinions or the claims contained within the articles.

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