Consumer Bites

The newsletter of the Health Care Consumers’ Association Inc.
 Issue 23/ 7 December 2025

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Update from the Office

International Forum on Quality and Safety in Healthcare

Last week, some of the HCCA staff team, consumer representatives and Executive Committee members attended the International Forum on Quality and Safety in Healthcare in Canberra.

The theme of the conference was ‘Think differently, start small, have impact’.

HCCA had a stall in the conference foyer which meant that we were able to promote our work and the value of consumer partnerships, and we had lots of great chats to people from across Australia and the world who were interested in what we do. We caught up with local health service colleagues who were attending, and colleagues from our sister advocacy organisations across Australia. HCCA presented two posters and held a workshop on Safer Care for Gender Diverse and Intersex People with our friends at Meridian and A Gender Agenda.

Caption: HCCA staff, members and friends

Caption L to R: Kate, Av (HCCA), Gabe Filpi, Dr Vik Fraser (AGA) and Harry Mahony (Meridian)

Caption: Kathryn with her poster on codesign work for QUM project

Caption L to R: Shivana and Nat Zuber (CHS) show off their poster on the Peadiatric Navigation and Liaison Service

Presentations that included active consumer involvement stood out as particularly strong. Several projects featured ways to ‘gamify’ improvement, to engage and motivate staff to participate and engage enthusiastically. Rather than focusing on mistakes, elements of friendly competition meant that staff were recognised, celebrated and rewarded for their participation in improvement work. This approach tended to lead to positive outcomes and adoption of better practices. Everyone in a health service, both clinical and non-clinical, contributes to a patient’s experience.

Health services have complex challenges, many of which have been thorny problems for a long time. It is easy to feel daunted- from both internal and consumer advocacy perspectives- by bureaucratic systems, limited resources and time,  but even small monthly efforts can make a difference. Many presenters were showcasing projects that had started small and had not waited for funding or widespread support to begin work on their improvement ideas.  We appreciated the opportunity to be inspired and encouraged by good work from around Australia and the world.

A key message that stayed with us was, “Progress is made at the speed of trust.” So much of improvement work relies on building relationships that create trust between people, at big and small scales, and it is this trust that drives real change.

 
2025 National Multicultural Health and Wellbeing Conference

Ivapene attended the multicultural health and wellbeing conference in Melbourne. The conference highlighted the need to work together with multicultural communities to build fair, accessible and culturally safe health services. Speakers emphasised that services must be co-designed, tailored to community needs, and supported by stronger action against racism.  

Key themes included improving digital health, fair access to research and data, and better collaboration across the health system.

Two major national initiatives were launched at the conference:

  • Vision 2030, a strategy to improve culturally inclusive ageing:01.pdf; and
  • The Australian Multicultural Women’s Alliance (AMWA): https://amwa.net.au/

An important message from the conference is that technology, inclusion and representation are key to achieving true health equity.

Caption L to R: Ivapene (HCCA) Mary Ann Geronimo (FECCA CEO)

Caption: Ivapene with FECCA Team

Darlene Cox
Executive Director

 

In this Issue

  • Health Literacy Update
  • Health Literacy - QUM Update
  • Chronic Conditions Network Update
  • Items of Interest
 

Health Literacy Update

It was great to see so many good pieces of work at the International Quality and Safety Forum. A lot of people from interstate grabbed our Staying Safe in Hospital booklets to consider adapting for their own areas.

C finished a series of 7 short ‘lunchtime learning’ sessions on health literacy with Woden Community Services staff. These sessions aimed to raise awareness of health literacy and share resources to help them support people to find and access health care and information.

A highlight of the multicultural conference Ivapene attended was connections made with the wider Samoan network. Wonderful connecting with the team from Centre for Population Genomics learning more about OurDNA project:  OurDNA | Building a future where all Australians benefit from genetic…

Caption L to R: Henry T (Population Genomics), Ivapene (HCCA) LietaS-D (MAIAC). Paul T (Ethnic Communities of QLD

 

Ivapene and Janine ended the week attending the annual Baha’i Parliamentary Reception. The event marked the birth anniversary of Baha'u'llah the Founder of the Baha'i Faith and embrace the theme of ‘...celebrating and embracing diversity’.

Caption L to R: ArifH (Chair CMCF), Ivapene, ShephalieW (Director Australian Baha’i Community), Janine, RaviK (President AMAN)

Caption: ShobhaV, Ivapene, Chiaka Barry (MLA). ArifH, Janine

— the Health Literacy team
(C and Ivapene)

 
Resources to Help with Health Anxiety

It’s normal to worry about your health sometimes, but for some of us, anxiety about health can be unhelpful or distressing. It can even get in the way of managing the health conditions we already have. These modules from the Centre for Clinical Interventions can help you understand and manage health anxiety.

 

Health Literacy - QUM Update

Our Quality Use of Medicines (QUM) team reached a significant milestone at the end of October, submitted our final report for Grant #1 to the Department of Health, Disability and Ageing! We are continuing to progress our Grant #2 topics.

To find out more about our QUM Program visit About - Medicines for Better Health - QUM Consumer Resources Hub

Our QUM Grant #1 topics have lots of great consumer resources that are free and available now. They might be relevant to you, your friends, family or others in your networks and communities. Feel free to share around these links to our QUM topic pages:

  • Atopic dermatitis (Eczema)
  • Gout
  • Antidepressants in Older People
  • Oral Anticoagulants for Atrial Fibrillation

Our QUM Grant #2 topics are in the development stages. Our first consumer resources will soon be released for Antidepressants in Teens and Young People. In 2026 we will also be bringing out a range of evidence-based and health literate consumer resources for:

  • Menopause,
  • Secondary stroke prevention, and
  • Osteoporosis (secondary fracture prevention).

Stroke – seeking consumers and carers with lived experience
For each QUM topic we look for consumers and carers to work with us as part of our research and design process, and to create and test resources like factsheets, care plans, animations and videos. We are currently seeking consumers and carers with lived experience of stroke. If you are interested, please get in touch with Darcy Whitmore at [email protected] or call (02) 6230 7800.

— the QUM team
(Kathryn, Nadia and Darcy)

 

Chronic Conditions Network Update

We had our final Chronic Conditions Network ‘Wrap Party’ meeting for 2025! We chatted about upcoming projects in 2026, potentially doing some first aid and defibrillator training together, sharing our budget submissions to support each other, and having plenty more meetings together in 2026. Thank you to all the organisations that have engaged with the Network in 2025 and I greatly look forward to our next adventures!

Caption L to R: Diane (Asthma Australia, Pat (TPI Veterans Association), Paula (Palliative Care ACT – Leo’s Place), Claire (Carers ACT), Marina (Canberra Lung Life Support Group), Mary (Cancer Council), Janine (HCCA), Kat (Diabetes Australia), Lauren (Heart Foundation), Michelle and Pene (HCCA).

— Michelle
(Chronic Conditions Network Coordinator)

 

Items of Interest

CHF Talks: Stigma & how it prevents consumers seeking the care they need

Date: Tuesday 9 December 2025 
Time: 11.30 am– 1 pm AEDT  

Consumer Health Forum of Australia hosts free public webinars under the banner of CHF Talks, which brings together consumers, experts and advocates to explore key issues shaping the future of healthcare. 

This webinar will discuss stigma and how it prevents consumers seeking the care they need. 

To register, please click here.

 
Easy English Guides to divorce and family violence available online

Women’s Legal Centre ACT (WLC) has developed a series of Easy English Guides on family violence and divorce to make sure important information is accessible to all.

With the assistance of Scope and in consultation with Women with Disabilities ACT and Down Syndrome and Intellectual Disability ACT (DSIDACT), the Guides include clear language and images to create these intended resources to support clients’ understanding of family violence, divorce, the legal processes surrounding them, and services available for support.  

They are available as PDFs through our website and via the links below: 

About divorce  

About family violence  

How to stay safe from family violence  

Family violence orders and going to court 

If you would like further information or guidance on using the Easy English Guides, please email [email protected]. 

 
ACT Human Rights Commission hosts a communty forum to mark Human Rights Day - Wednesday 10 December 2025

Every year the ACT Human Rights Commission hosts a community forum to mark Human Rights Day.

You are invited to join us on Human Rights Day this year, 10 December 2025, at a hybrid event exploring rights for older people.

  • Making rights real for older people
  • 12:30—2pm, Wednesday 10 December
  • Hybrid event: Join us in the Members Dining Room 1, Old Parliament House Canberra (enter via Queen Victoria Terrace), or join our livestream via Teams.

Our speakers include:

  • Robert Fitzgerald AM, Age Discrimination Commissioner, Australian Human Rights Commission.
  • Sue Hendy, Director, International Federation on Ageing
  • ACT Discrimination Commissioner, Karen Toohey.

Light refreshments will be served.

We look forward to warmly welcoming you at our 2025 Human Rights Day event. Registration via Humanitix

Queries or more event info: [email protected]

 
Emergency department wait times for mental health patients stretching over 23 hours, report finds.

More people need to be admitted for mental health treatment but the number of beds has decreased over the past decade, according to a new report.

Australasian College of Emergency Medicine data shows wait times are particularly high in South Australia, Tasmania and Western Australia.

To read more, find full article here.

 
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**FREE interpreter services available over the phone via the Australian Government’s Translation and Interpreting Service (TIS) on 131 450**

© 2025 Health Care Consumers' Association Inc, All rights reserved. Edited by Darlene Cox.

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