Consumer Bites

The newsletter of the Health Care Consumers’ Association Inc.
Volume 19/ Issue 19 / 16 October 2025

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Update from the Office

It is an extremely busy time in terms of health policy and reform.

The HCCA team has started to prepare our response to the Inquiry into ACT health system data, demand and processes which has been set up by the ACT Government.

I have had an informal discussion with the Chair of the Inquiry, Michael Walsh PSM, and are organising a longer discussion in the coming weeks. The Inquiry involves research, stakeholder engagement (clinicians, staff, consumers, industrial bodies), site visits to Canberra public health facilities, review of existing data and previous reports.

The Terms of Reference include consideration of:

  1. Health data availability —
  2. Implementation of the Digital Health Record (DHR) — how well this new system is working
  3. Planned care reforms — how to improve planning of non-urgent / scheduled care.
  4. Drivers of demand in the health system
  5. Workforce issues — recruitment, retention, morale of medical, nursing, allied health staff.
  6. Governance, systems and processes — how decisions are made, how resources are allocated, how processes (e.g. referral pathways, wait lists) are working, and where they may be failing. ACT Government+2Region Canberra+2
  7. Waiting lists

If you are interested in providing input into this work, please let Shivana know. You can email Shivana at [email protected]

Dawson Review: Transforming health professions regulation in Australia: Independent Review Final Report

Health regulation has also been discussed with the release of Dawson review, Transforming health professions regulation in Australia: Independent Review Final Report. This report acknowledges the frustration and distress experienced by practitioners and consumers under existing arrangements. It recognises the voices of educators, practitioners and consumers must inform strategic direction the community needs to have a stronger voice to inform the National Scheme.

Many things struck me in reading this report. Most notably that there is shared dissatisfaction with the way complaints are handled and this is felt equally deeply by consumers and practitioners. Dawson describes this as “a significant challenge to the integrity of health practitioner regulation."

The report also identifies another issue for consumers which relates to the risks associated with non-registered practitioners who are delivering health services in areas where there is not a formal training and qualification requirement or accreditation, and no protective structures (such as worker screening, qualification checks, supervision, or performance management) are significant.

This underscores the importance of immediately rolling out the National Code of Conduct for non-registered health practitioners and a National Register of Prohibition Orders across Australia. In the ACT we have has implemented this Code of Conduct, requiring unregistered health workers like massage therapists, counsellors, and beauticians to display the code and complaint information, with complaints handled by the Health Services Commission.  

You can read the Ahpra response here

Darlene Cox
Executive Director

 

In this Issue

  • Upcoming HCCA Events
  • Policy and Research Update
  • Health Literacy Update
  • Health Literacy - QUM Update
  • Consumer Involvement and Representative Opportunities
  • Items of Interest
 

Upcoming HCCA Events

Staying Safe in Hospital

Monday 20 October, 10:30am – 12pm

Online via Zoom

Join us to talk about your rights in health care, hospital standards, tips to prepare for a hospital stay, risks and ways to keep yourself and your loved ones safe.

Register on Humanitix
Consumer Participant Training

Thursday, 12-2pm: 16th, 23rd and 30th

Online 

Sign up to learn more about ways that community members can participate in speaking up for change and improvement in our health system, and how to be an effective advocate. HCCA members who have completed this course can nominate for consumer representation opportunities with HCCA.

Register on Humanitix
 

Policy and Research Update

Have your say on the emergency laparotomy standards

The Australian Commission on Safety and Quality in Health Care is consulting on the Draft Emergency Laparotomy Clinical Care Standard.

Consultation materials including the draft standard and guide for consumers are available here.

Consultation closes Tuesday 14 October 2025. Feedback can be provided to the Commission via online survey.

Click here to read more
CHS Home Visiting Procedure

Canberra Health Services (CHS) is seeking feedback on its Home Visiting Procedure (“the Procedure”).

The Procedure provides CHS Network staff with guidance on the safe delivery of health services in consumers’ homes. Home visiting aims to improve access to care and reduce reliance on urgent care clinics, emergency departments, or acute services.

The Procedure assists in identifying, assessing, eliminating, or effectively mitigating risks and hazards associated with working in consumers’ homes so that best practices of care and treatment are maintained.

If you would like a copy of the Procedure and/or provide input please contact Shivana Chandra on email ([email protected]) or phone (02 6230 7800) by Monday 13 October 2025.

— the Policy and Research team
(Jess, Stephen, and Shivana)

 

Health Literacy Update

Last week, C got to attend the Advance Care Planning international (ACP-i) conference on the Gold Coast. They learned a lot about the challenges promoting ACP worldwide, and ways researchers, clinicians, consumers and families are working together to improve it. They are working on some blog posts about the event which we’ll share here.

The team had a successful and busy stall at the COTA Senior’s Expo. We recorded more than 170 people who stopped by for a chat and took many of the resources we had on the day. The most popular were HCCA’s:

  • ‘Finding the right health service in the ACT
  • Easy Read - Staying Safe in Hospital Series
  • Translations of ‘8 simple steps to keep yourself safe in hospital’
  • Translated versions of Canberra Health Services ‘Know where to
  • Playing cards & pens

Caption Left to Right: HCCA'S Shivana, Ivapene, Av, Michelle, Evie 

We had many positive comments on providing translated health resources and our playing cards. A few people commented the cards were ‘… the best resource they got in the whole expo!’

To top off the fortnight, Ivapene attended a few events in the community:

Mental Illness Education ACT (mieact) Launch DoNOHarm.

Caption Left to Right: Ivapene, Dr Vik Fraser and Zakia

More information here

African Australian Awards 10th Anniversary

Caption Left to Right: Sade, Zakia, Ivapene and Shephalie

ACTCOSS NAIDOC Week Celebration

Caption Left to Right: Majeda Beatty, Ivapene, and Xing Beatty

— the Health Literacy team
(C and Ivapene)

Evidence does not show a link between paracetamol and autism 

The Therapeutic Drugs Administration (TGA) has put out a media release rejecting claims by the US Trump administration that use of paracetamol (Tylenol in the US) during pregnancy causes autism and ADHD. Doctors and scientists around the world have also rejected the claims.

The facts:

  • Paracetamol is safe during pregnancy when used in the right dose.
  • Avoiding medicines that can lower fever and pain may be dangerous for unborn babies.
  • Large high-quality studies (like this one) have not been able to find any sign that paracetamol use could cause autism or ADHD.

If you are worried about using any medicine, speak to your doctor or pharmacist.  

More on this story from experts and autistic advocates, click here.
 

Health Literacy - QUM Update

Depression or Anxiety later in life: getting back to feeling well

October is Mental Health Month! We know that depression and anxiety can affect people at any age, including later in life. Many older adults use antidepressants to support their mental health. HCCA’s Quality Use of Medicines Program aims to help people use medicines safely and well, for better health.

The Depression or Anxiety later in life: getting back to feeling well resource is designed to help older people and have open conversations with their healthcare professional or someone they trust about managing depression or anxiety, and living well. It has helpful tips for how to manage your mental health and find the support you need.

This resource was developed by HCCA and the QUM Alliance as part of the Using Medicines for Better Health. Funded by the Australian Government. 

For more information and resources on antidepressants in older people, including our My Journey with Antidepressants video series, click here.

— the QUM team
(Kathryn, Nadia and Darcy)

 

Consumer Involvement and Representative Opportunities

Please visit Consumer Opportunities on the HCCA website to learn more about, and nominate for, any of the following opportunities.

 
National/Interstate Opportunities
Help eliminate racism in health regulation

 New!  Applications close Sunday the 19th of October at 11:55pm.

The Australian Health Practitioner Regulation Agency (AHPRA) invites Aboriginal and Torres Strait Islander people with experience addressing racism and a commitment to cultural safety to join their Racism-related Aboriginal and Torres Strait Islander Special Issues Committee (RATSISIC).

To learn more and submit an application go to this website.  

Help protect the public and set national standards for registered health practitioners

 New! Applications close Sunday the 19th of October at 11:55pm.

The national Boards are seeking community member applications for the following positions:

  • Medical Board of Australia
  • Medical Radiation Practice Board of Australia
  • Podiatry Board of Australia

National Boards help protect the public and set national standards for the registered health practitioners they regulate.

To apply and learn more please click here. 

 

Items of Interest

Women's health attack care improving but not fast enough, researchers say

Australian researchers have found disparities in heart attack care between men and women have reduced, but women remain less likely to receive life-saving treatment.

Click here for full article from ABC
 
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**FREE interpreter services available over the phone via the Australian Government’s Translation and Interpreting Service (TIS) on 131 450**

© 2025 Health Care Consumers' Association Inc, All rights reserved. Edited by Darlene Cox.

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Consumer Bites is the newsletter of the Health Care Consumers' Association. Consumer Bites provides a small snippet of health related articles our members might find interesting to consider and analyse. The HCCA does not endorse any opinions or the claims contained within the articles.

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