Consumer Bites

The newsletter of the Health Care Consumers’ Association Inc.
Volume 15 / Issue 15 / 26 September 2025

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Update from the Office

Evaluating health care services and programs is important because it helps us understand whether they are meeting the needs of consumers and communities. We are interested in looking at how well a service works, who is using it, and what outcomes it produces. The pressure on the health budget means we need to evaluate services to see how they are making a positive difference to people’s health. 

HCCA advocates for health care is safe, effective, and focused on the people it is meant to help. Evaluation is key to that. By measuring performance, comparing it to standards and community expectations, and learning from successes and mistakes, health services can improve what they do over time. 

Evaluation also helps identify issues, such as gaps in care, inefficiencies, or unintended consequences. Changes can be made to improve the quality and safety of care, consumer experience,  support for staff and reduce any waste of resources. 

Evaluation supports transparency and accountability, and it helps build public trust in the health system. Ultimately, evaluation drives improvement, so that health care can keep adapting and delivering the best outcomes for everyone.

There are two areas of the ACT Health system we want to see evaluated. 

Walk in Centres are highly valued by the community. HCCA is a strong supporter of this model of care and the affordable and timely access to care it provides for consumers. Still, Walk in Centres have been in place for about 15 years and it is time to evaluate the program.

GPs have been calling for an evaluation to determine whether the Walk in Centres offer value for money or reduce the load on the hospital. 

We hear from Government that the service is safe and meeting community need. From GPs we hear concerns about fragmentation,  that nurses are working outside their scope of practice and there are risks to patient safety. Both have strong vested interests in this. We often hear positive stories about Walk in Centres from consumers. Our call for evaluation is more about transparency and accountability than concerns about safety of care.  It is time for an independent evaluation.

The Digital Health Record has been in place for almost three years.  We want to see an evaluation to see if it has delivered the benefits that were identified in the planning stages. Has it delivered improvements in the quality and safety of care? There was a DHR Program Review by KPMG but it was focused on financial management,  administration and program governance.  We want to understand the difference this significant investment has made to improving care, reducing adverse events such as medication errors, reducing duplication of tests and treatments, improving connection with health care treating team and supporting consumers to be more active in their own care.

Darlene Cox
Executive Director


Southside Hydrotherapy Pool Opening Day

HCCA was delighted to attend the opening of the new hydrotherapy pool at the Lakeside Leisure Centre (Corner Athllon Drive & Anketell Street, Greenway) today. The new pool is a much-needed facility and helps to fill an important gap for people who use hydrotherapy as part of their rehabilitation, maintenance and preventative healthcare treatment. Previously, a hydrotherapy pool was located at The Canberra Hospital but it closed in 2019.

HCCA was delighted to attend the opening of the new hydrotherapy pool at the Lakeside Leisure Centre (Corner Athllon Drive & Anketell Street, Greenway) today. The new pool is a much-needed facility and helps to fill an important gap for people who use hydrotherapy as part of their rehabilitation, maintenance and preventative healthcare treatment. Previously, a hydrotherapy pool was located at The Canberra Hospital but it closed in 2019.

CAPTION: HCCA member Joanne Baumgartner helps Ministers Rachel Stephen-Smith and Yvette Berry cut the ribbon to open Tuggeranong’s new hydrotherapy pool.


CAPTION: Joanne was involved with the new pool consultation and is very happy with the outcome.


QUM - Anticoagulants Resources

The QUM team has been busy working with consumers and QUM Connect to develop some new resources for consumers about Oral Anticoagulants for Atrial Fibrillation. The Oral Anticoagulants topic page aims to provide and help consumers navigate information about Oral Anticoagulant medicines, their role in Atrial Fibrillation, and impact on reducing stroke risk. A big thank you to all the consumers involved in the co-design of these resources:

  • Animation about Oral Anticoagulants for Atrial Fibrillation
  • Frequently Asked Questions about Oral Anticoagulants

The Anticoagulants topic for our Quality Use of Medicines Program has benefited greatly from the advice of consumers and carers with lived experience, but we have also been able to work with a range of organisations including the Stroke Foundation, Hearts 4 Heart, Heart Support Australia and the Australian Multicultural Health Collaborative via FECCA.

Learn more about our Quality Use of Medicines Program

HCCA Members' Update 

Our next member’s forum will be on Wednesday September 3, from 12-2pm (with lunch). HCCA members keep an eye on your email inbox for an invitation coming soon.  


 

In this Issue

  • Policy and Research Update
  • Health Literacy Update
  • Chronic Conditions Network Update
  • Consumer Involvement and Representative Opportunities
  • Items of Interest
 

Infrastructure Update

A Changing Place at the new hydrotherapy pool

The new hydrotherapy pool features a fully accessible adult Changing Place. It is great to see the ACT Government install another one in a health facility, in addition to the one now on the Canberra Hospital campus. A Changing Place enables people with disabilities who need to use a ceiling hoist to change clothes, shower and toilet, to be able to use the pool.

CAPTION: This picture is taken from inside the change room. The hoist on the ceiling attaches to another, going directly out through automatic doors and allowing a disabled person to enter the pool that way. You can also see the ramp into the pool, from the other end.


 

Policy and Research Update

Consultation - National Safety and Quality Health Service Standards

The Australian Commission on Safety and Quality in Health Care (the Commission) develops standards to guide health services to deliver safe and high-quality health care. The Commission is currently reviewing the National Safety and Quality Health Service (NSQHS) Standards to develop a third edition.

The Commission is seeking feedback from consumers in order to understand the changing needs of consumers and the heath sector.  

HCCA will be hosting a focus group for interested members to find out what you think is important and how the current Standards could be improved – particularly Standard 2: Partnering with Consumers.

Focus Group: Friday 22 August, 12.00 – 1.30pm.

Written feedback: Due Friday 12  September 2025.

To register your interest in this consultation or to learn more, please email Jessica Lamb ([email protected]) or phone the HCCA office on 6230 7800.


 

Health Literacy Update

Last Friday, we partnered with Palliative Care ACT to run a Dying to Know Day Morning Tea at the QT. Over 40 joined us to have conversations with experts in Aged Care, Palliative Care, Advance Care Planning, Wills, Funerals and more.

This year’s Dying to Know theme is Nobody Knows – the secret I’m glad I shared. Only 53% of Australians feel comfortable talking with family about death, but 100% of us will face it. That’s a lot of us keeping our end-of-life wishes secret! Grab some resources from the Dying to Know Day website to help you start the conversation.


Ivapene represented HCCA at the World Hepatitis Day Breakfast to support Hepatitis ACT’s efforts to raise awareness about liver health and the importance of prevention, testing and treatment. 

CAPTION: World Hepatitis Day July 2025 Sarah Ahmed (CEO Hepatitis ACT), Ivapene, Michiko Takita-Dowling

Read more about the ‘Good liver, Good life’ campaign here

Lastly, Ivapene joined the members of the Ministerial Advisory Council for Multiculturalism (MACM) to host it’s annual community forum with the theme of ‘Strengthening Canberra's Multicultural Fabric’. The forum provided a platform for the community to share experiences, identify strengths, challenges, and propose improvements toward a more inclusive and connected Canberra. 

CAPTION: MACM Community Forum Members with Minister Pettersson & Uncle Warren Daley Aug 2025

Learn more about MACM’s members, work plan, and the Multiculturalism Act 2023 here

— the Health Literacy team
(C and Ivapene)


Are you getting the most out of Medicare?

Consumers we talk to often have trouble finding affordable GP appointments. But many of us aren’t making use of all the Medicare items that can help. Most GPs will still bulk bill or charge a lower fee for health checks and plans like:

  • Aboriginal and Torres Strait Islander people can get a 715 yearly health check at Winnunga or their GP
  • People with intellectual disability can get a yearly health check – learn more at It’s Doctor Time!
  • People with a long-term condition can get a health check, care plan and referrals for bulk-billed allied health services as part of a Chronic Condition Management Plan
  • People with mental health issues can get a care plan and 10 cheaper or bulk billed mental health services with a Mental Health Treatment Plan

Asking about these services can help you get regular reviews of your health so you can manage your conditions and live well at home.


 

Chronic Conditions Network Update

We had a great final ‘Managing Your Health’ webinar for 2025 on the topic of ‘Self-Advocacy and Self-Management’ in health conditions. I want to extend a warm thank you to our panel members, Marina Siemionow from Canberra Lung Life, Marcia Kimball from Parkinson’s ACT and Megan Kane, a new member to HCCA who is on a health care journey and sharing positivity along the way.

The key themes and tips to emerge from our panel discussion were about:

  • Relationship building with practitioners to allow for open and clear communication and equal partnership in health decision making.
  • Persistence and repetition - understanding that sometimes advocacy is a long game, and you might have to persist and build change slowly over time, and
  • Emotion is something that happens in any health care experience. If you find yourself unable to communicate clearly and feel like you are unable to advocate for yourself in that moment – advocate for time instead. You can always push back and ask for time to decide, time to think, or time to rest and recover before being able to communicate your needs effectively.

For more advice tips and tools – remember you can do our online learning module ‘Self Advocacy in Healthcare’. No log-in, passwords or time requirements – Just click below and go!

Self Advocacy in Healthcare

— Michelle
(Chronic Conditions Network Coordinator)

 

Consumer Involvement and Representative Opportunities

Please visit Consumer Opportunities on the HCCA website to learn more about, and nominate for, any of the following opportunities.

 
National/Interstate Opportunities
Supporting Health professionals to optimise medicine use: Consumer Advisory Group

 New!  

An opportunity to join the Consumer Advisory Group (CAG) for the "SUPPORT-Meds: Supporting health professionals to optimise medicine use” program to reduce the use of high-risk and unnecessary medicines in Australia. Aiming to improve appropriate and safe medicine use through health professional support and education, consumer empowerment and multidisciplinary care.  The CAG will guide the program team to make sure to make sure the program meets the needs of consumers.

When: Meetings are every three months, starting in September 2025 and continuing until March 2028.

Meetings are hybrid, Zoom or Monash University, Parkville campus, Victoria.

This would suit a consumer with lived experience of long-term medicine use, particularly medicines for pain or insomnia, and an interest in best practice medicine prescribing and use.

To apply and get more information please email Susan: [email protected]


Immunisation Research Consumer Advisory Group

 New!  Closing date: Sunday 14 September 2025 

When: Three online meetings a year until June 2026

The National Centre for Immunisation Research and Surveillance (NCIRS) Social Science Unit are seeking two consumers to join their existing national Consumer Advisory Group. This is an opportunity to give your input and advice to help guide current and upcoming research projects. The project is for all immunisations, but does tend to lean more towards immunisations of children and teenagers.

For full information, please visit the Consumer Opportunities page on our website.


 

Items of Interest

Our Canberra Easy Reads

The ACT Government Our Canberra Newsletter is now available in Easy Read format!

To subscribe and view previous newsletters, click here

Australian Commission on Safety and Quality in Health Care: National Medicines Symposium

 New!  Wednesday 22 October, 2025 

Registrations are open for the National Medicines Symposium that will be hosted by the Australian Commission on Safety and Quality in Health Care on 22 October 2025.

You will hear from leading clinical experts, people with lived experience and more on theme ‘Quality use of medicines in people with diabetes’.

For full information and to register, please visit the page on the website.

Navigating My Way by VMIAC 

Navigating My Way is a new project by VMIAC designed to help NDIS participants with a psychosocial disability and NDIS service providers who work with them.

These written and oral resources will help NDIS participants with a psychosocial disability to:

  • Understand their rights when working with NDIS service providers
  • Grow their knowledge of what high quality supports are
  • Learn self-advocacy skills including how to put in complaints
  • Communicate their needs, preferences and identity

Resources for NDIS Service providers will help them to:

  • Better understand how some participants with psychosocial disability feel when they raise complaints
  • Learn how to best respond to complaints
  • Establish positive and proactive feedback pathways
  • and self-assess the effectiveness of their complaints processes
To learn more about and join VMIAC sessions click this link or email [email protected] 
 
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**FREE interpreter services available over the phone via the Australian Government’s Translation and Interpreting Service (TIS) on 131 450**

© 2025 Health Care Consumers' Association Inc, All rights reserved. Edited by Kate Gorman.

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Consumer Bites is the newsletter of the Health Care Consumers' Association. Consumer Bites provides a small snippet of health related articles our members might find interesting to consider and analyse. The HCCA does not endorse any opinions or the claims contained within the articles.

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