Consumer Bites

The newsletter of the Health Care Consumers’ Association Inc.
Volume 11 / Issue 20 / 22 May 2025

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Update from the Office
Commonwealth Government COVID-19 Response Inquiry

The Final Report of the independent inquiry into Australia’s response to the COVID-19 pandemic has been released. 

The inquiry aimed to identify lessons learned to improve Australia’s preparedness for future pandemics. It looked at both health and non-health responses, including vaccinations, treatments, essential supplies, aged care, disability support, mental health services, supply chains, and financial aid for individuals and businesses.

The panel received over 2,000 submissions, including one from HCCA.  They also held a series of more than 20 roundtable discussions in May-June to explore the impact of the COVID-19 pandemic on different industries and groups.

The report emphasizes the need for stronger collaboration among governments to guide balanced policies and make informed decisions during crises. It includes nine key recommendations:

  • Minimize harm: Consider health, economic, and social effects of a pandemic.
  • Planning and preparedness: Create a tested national pandemic response.
  • Leadership and coordination: Quickly establish a governance team for leaders to prioritize health, social, economic, and equity issues.
  • Evidence and evaluation: Implement transparent and efficient processes for collecting and evaluating evidence.
  • Agility and innovation: Be ready to adapt to change.
  • Relationships: Strengthen connections between systems, organizations, and governments.
  • Trust: Rebuild and maintain trust between the community and government.
  • Equity: Ensure fairness in delivering public health measures.
  • Communication: Maintain coordinated national public health communication.

The key outcome of the report is the proposal for a permanent Australian Centre for Disease Control (CDC) to enhance national disaster preparedness, public health surveillance, and data collection.

The inquiry page can be found here. 

Guide to Understanding Medicines Access Programs

There is a new guide to help people understand the Medicines Access Program (MAPs) in public hospitals. MAPs helps people get high-cost medicines that aren’t covered by the Pharmaceutical Benefits Scheme (PBS). The guide explains how MAPs work, how to access these medicines, possible costs, and key questions to ask your healthcare team. The guide is made by the Council of Australian Therapeutic Advisory Groups (CATAG). You can download the guide from the CATAG’s website.

Chronic Obstructive Pulmonary Disease Clinical Care Standard

The Australian Commission on Safety and Quality in Healthcare has introduced the first national guidelines for managing Chronic Obstructive Pulmonary Disease (COPD). The standard was released on 17 October 2024. It aims to help doctors and health services understand how to care for people with COPD, to improve their health and reduce avoidable hospital admissions.  The guidelines also highlight the importance of addressing the palliative care needs of people with COPD to help manage symptoms and improve their quality of life.

You can find the standard and read more about its background and development on the Australian Commission on Safety and Quality in Healthcare website.  

Darlene Cox
Executive Director

 

In this Issue

  • Upcoming HCCA Events
  • Infrastructure Update
  • Policy and Research Update
  • Health Literacy Update
  • Consumer Involvement and Representative Opportunities
  • Items of Interest
 

Upcoming HCCA Events

HCCA Online Consumer Participation Training

12pm – 2pm, Monday 11 and 18 November 2024

HCCA’s free online consumer participation training is running on Mondays 11 November and 18 November. This training helps you learn skills and information you can use to advocate for yourself and others, as well as how to be an effective health consumer representative. When you complete this training and become an HCCA member, HCCA can endorse you for consumer representation opportunities.

Register on Humanitix
 

Infrastructure Update

Renovations in Canberra Hospital foyer (Building 2)

From mid-November, the Canberra Hospital foyer (the old reception) in Building 2 of the Garran campus will be renovated.

The new main reception space is now in the Welcome Hall. The renovated foyer in Building 2 will include:

  • a new cafe (Yamba Cafe opening soon)
  • new seating areas with integrated wheelchair spaces
  • open-plan layout and new decor
  • a new Veterans’ Lounge and Veterans Liaison Office
  • Volunteers’ Hub
  • Gift Shop
  • Clinical Training Room.

The works are expected to be completed by mid-2025, with most work occurring during November - April. The work will be done in stages and mainly during business hours, with some after-hours and weekend work. Patients, visitors and staff may experience noise and minor disruptions throughout the works. Temporary signage will guide people around the construction work. Speak with Canberra Hospital volunteers or staff members if you need any assistance.

The Veterans’ Lounge, the Canberra Hospital Foundation’s (CHF) gift shop and the CHF donation station have all moved to temporary locations:

  • The Veteran’s Lounge temporary location is in Building 3, Level 2, next to Ward 12B
  • (CHF) Donation Station temporary location is in Building 12, Level 3. In-kind donations (new and handmade items only) will continue to be accepted from the temporary location.
  • The CHF Gift Shop has temporarily moved to Building 3, Level 2, next to Ward 11B.
Yamba Drive Entrance at the Canberra Hospital

The Yamba Drive entrance to Canberra Hospital is currently closed. This is due to renovations to Canberra Hospital Foyer (Building 2). There is an alternative hospital entrance along Bateson Road (through Building 3) can also be used. However, people are encouraged to use the new main entrance on Hospital Road. This has a drop off and pick up area out the front. Works to remove old structures from the Yamba Drive area are now underway. These works may generate some noise but Major Projects Canberra are working closely with nearby wards and staff areas to minimise impacts, provide breaks and work updates. When complete, the entrance will feature:

  • new seating
  • a wheelchair collection point
  • new art and sculptures
  • a new bus stop
  • landscaping, shade cover, and an upgraded staff courtyard.

— Darcy
(Infrastructure Project Officer)

 

Policy and Research Update

Health Service Standards

The Australian Commission on Safety and Quality in Health Care (ACSQHC) recently published the National Safety and Quality Health Service Standards User Guide for the Health Care of People with Intellectual Disability.

The Guide assists health services to manage the risks of health care for people with intellectual disability. You can read the Guide on the ACSQHC website.

Canberra Health Services’ Procedure - Cognitive Impairment and Deteriorating Mental State

Canberra Health Services has developed a procedure to support staff providing health care to people with cognitive impairment.

If you are interested in providing feedback on the procedure, please contact Jessica Lamb via [email protected] or by calling the HCCA office on 6230 7800. 

Feedback is required by Wednesday 13 November 2024.

Patient Identification and Procedure Matching

Canberra Health Services is reviewing their procedure for Patient Identification and Procedure Matching. This procedure aims to ensure that clinical staff accurately identify patients and match them with the health treatment intended for them.

To receive a copy of this procedure and provide your feedback, please contact Jessica Lamb via [email protected] or by calling the HCCA office on 6230 7800.  

Feedback is required by Friday 22 November 2024.

— the Policy and Research team
(Jess, Stephen, and Shivana)

 

Health Literacy Update

The team has been undertaking our first meetings of the Disability and Health Literacy Project's consumer reference group (CRG). This CRG will advise our team as they complete research for the Disability and Health Literacy Project.

We also facilitated focus groups for the Australian Medical Council. These looked at their standards for specialist medical programs review.

To close out Health Literacy month, C presented a webinar on Writing Health Information Everyone Can Understand. This covered how to write consumer information in plain and actionable language. The webinar also gave formatting tips for consumer handouts.

You can watch the recording on YouTube, download our new factsheet and check out more resources on the topic on the Canberra Health Literacy Hub.

Interstate Patient Travel Assistance Scheme (IPTAS)

The Patient Assisted Travel Schemes (PATS) support people in regional, rural and remote areas to access essential medical care. The National Rural Health Alliance has released a fact sheet and guide for the 2024 PATS. This fact sheet provides information on the PATS available in each state and territory in Australia. It includes details on who is eligible, the financial supports that are offered, and how to apply. You can find the guide on the National Rural Health Alliance website.

Canberra Queer Community Hospital Visitors Group

This is a group started by community members who want to support queer (LGBTIQA+) patients in hospital to have a visitor or two if they'd like to, so they don't feel alone or isolated. If you'd like someone to visit you or you'd like to volunteer, you can join the private Facebook group called 'Canberra Queer Community Hospital Visitors'. Learn more by reading this flyer.

— the Health Literacy team
(C and Ivapene)

 

Consumer Involvement and Representative Opportunities

Please visit Consumer Opportunities on the HCCA website to learn more about, and nominate for, any of the following opportunities.

 
National/Interstate Opportunities
Asthma Inhaler Research Study 

Are you an adult (>18 years) living with asthma, and a current (within last 6 months) and regular (at least once a month) user of one or more types of respiratory inhalers? 

You are invited to participate in an interview as part of a research study. The study aims to investigate: 

  • consumer knowledge, awareness and attitudes about respiratory inhalers (including environmental impact), and 
  • barriers and facilitators for evidence-based respiratory care that is environmentally sustainable. 

Interviews will be conducted with a member of the research team by telephone or video call (e.g. Zoom) and are expected to take approx. 30-60 minutes to complete.  

You will receive a gift card to thank you for your time and participation. This project has been approved by MUHREC (#44951) and is funded by the Healthy Environments and Lives (HEAL) Innovation Fund. For more information and to complete the registration survey, go to: https://monash.az1.qualtrics.com/jfe/form/SV_9Y5OHNVLxgr0oDA   

 
Other Opportunities
The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia

Researchers from the College of Health and Medicine at the Australian National University are conducting a survey to examine the impact of out-of-pocket health costs on people with chronic conditions and carers.

Understanding the impact of these on the day-to-day lives of people living with chronic conditions will provide important new knowledge, and an opportunity to improve the equity of health and healthcare financing in Australia. If you are interested to take part in this survey, please follow this link to the survey and participant information sheet.

If you have any questions about the survey, please contact Associate Professor Jane Desborough at - [email protected]

 

Items of Interest

Understanding Dementia Online Course

The Wicking Dementia Research and Education Centre has developed a free online course aimed at anyone interested in dementia. 

When: February 2025, closes 21 April 2025

Enrollments Close: 24 March 2025

Where: online 

Cost: free

It provides insights from leading experts to help improve the quality of life for individuals affected by dementia, including those living with the condition, their families, caregivers, health professionals, and policy makers.

The course covers the causes of dementia, its impacts, and effective care practices, addressing a growing global health issue as the population ages. Participants can expect to spend about 3 hours per week on the course at their own pace and will receive a free certificate upon completion, with options for enhanced paid certificates available.

Connect Up 2617

The "Connect Up 2617" initiative has launched free local activities for young people in Belconnen and Bruce.

This program is designed for parents and caregivers aged 18 to 30 who live, work, or study in the area. Last week, the Social Strolling walking group kicked off with its first walk around Lake Ginninderra.

Social Strolling meets outside Stella's by the lake every Monday at 10:30 AM for a casual walk around Lake Ginninderra, followed by complimentary coffee back at Stella's at 11:30 AM. You can register in advance or on the day!

If you’re interested in other Connect Up activities like soccer, community gardening, lunch gatherings, and badminton, visit their website for more information.

MATCH Music App

The eHealth Team at Melbourne University are currently seeking participants to trial MATCH. MATCH is a music therapy informed training program and mobile app. It is designed to guide carers in the strategic use of music to support care for people living with dementia. If you are interested in the program, you can fill out an expression of interest form.

For more information and to register, please email [email protected] and www.musicattunedcare.com .

 
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**FREE interpreter services available over the phone via the Australian Government’s Translation and Interpreting Service (TIS) on 131 450**

© 2024 Health Care Consumers' Association Inc, All rights reserved. Edited by Darlene Cox.

Our phone number is

02 6230 7800

Consumer Bites is the newsletter of the Health Care Consumers' Association. Consumer Bites provides a small snippet of health related articles our members might find interesting to consider and analyse. The HCCA does not endorse any opinions or the claims contained within the articles.

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