Consumer Bites

The newsletter of the Health Care Consumers’ Association Inc.
Volume 11 / Issue 19 / 22 May 2025

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Update from the Office
ACT Election

Like many of you I watched with interest the results of the ACT Election. Results are yet to be finalised so we have a little longer to wait. In the coming weeks we will learn the makeup of the ACT Government and the allocation of ministries.

At the office we have started reviewing the ACT Labor Health Policy Position Statement in more detail to see where there is alignment with our priorities. We are especially interested in their commitment to:

  • Reform planned care and improve access to specialist outpatient services, elective surgery and other procedures.
  • Review the Interstate Patient Travel Assistance Scheme (IPTAS) to reduce administrative burden and upfront costs for children and families that need to travel for care.
  • Develop a multicultural health care hub in the Gungahlin Community Health Centre. This work will include a scoping study that investigates the needs of multicultural communities when accessing health care services in the ACT.
  • Increase emergency department capacity with additional Paediatric Emergency Department beds and strengthening streaming of older people through our emergency departments, supporting the needs of older people who are more at risk of complications such as delirium.

 

Review of the National Registration and Accreditation Scheme.

Last week I joined a small group of consumers to meet with Ms Sue Dawson. Sue was the former NSW Health Care Complaints Commissioner and has been engaged by Health Ministers to undertake an independent review of the National Registration and Accreditation Scheme. 

The review was commissioned partly in response to concerns about the management of professional misconduct by health practitioners. It is also to identify areas of “unproductive and unnecessary complexity”. The review will be completed by April 2025.

The Australian Health Practitioner Regulation Agency (Ahpra) is a key component of the National Scheme. I was a member of the Community Reference Group of Ahpra for nine years, from 2011. It is a complex regulation body.

The purpose of the National Scheme is clear - to keep Australians safe by providing high-quality health care. In reality this is complicated work. 

 Australia’s health regulatory system has many moving parts, with multiple agencies and decision-makers. All of this makes it hard for consumers and health workers to understand and navigate. 

A Consultation Paper was the basis of the discussion I participated in. The paper identifies the themes that have emerged so far in the review, the associated issues and challenges, and the potential reform directions.

You can read more about the review on the Department of Health and Aged Care website.

If you want to find out more about Aphra then I encourage you to register for this Ahpra webinar designed for consumer advocates. Registrations close Friday 25 October. It will run on Friday 1 November 2:30 – 3:30pm (AEDT).

Nurse-led Clinics: Getting a Return on your Taxpayer Dollar

Following the roll-out of urgent care centers outside the ACT, medical organisations have debated the value of Nurse-Led clinics, which we have in the ACT. HCCA members may be interested in this article by Mary Chiarella published to Pearls and Irritations. 

Chiarella defends the ACT's walk-in clinics and argues that these clinics are essential for improving access to care because they:

    • Reduce emergency department visits.
    • Save money in the long run.
    • Fill gaps in treatment, making healthcare more accessible.

Overall, Chiarella writes that these clinics provide affordable and accessible healthcare for everyone. It is good to have different types of healthcare options, including GP and nurse-led clinics. read the article here.

Stronger Bubba Born First Nations Resources and Promotional Assets

The Stronger Bubba Born resources aim to help Aboriginal and Torres Strait Islander women and families, and their health care providers understand what they can do to reduce the risk of Sorry Business Babies (stillbirth).

These resources were developed by the Stillbirth Centre of Research Excellence (CRE) Indigenous research team with the guidance of the Indigenous Advisory Group. Furthermore, the National Aboriginal Community Controlled Health Organisation (NACCHO) and the Waminda South Coast Women’s Health and Wellbeing Aboriginal Corporation are also collaborators. Access all their resources through the website.

This project also produced culturally adapted resources for four migrant and refugee communities, to help to reduce the chance of stillbirth. You can find in-language resources (in Arabic, Dari, Dinka and Karen) for women, their families and healthcare teams. Resources were co-designed with communities and healthcare professionals. They are available at Home | Growing a Healthy Baby 

Darlene Cox
Executive Director

 

In this Issue

  • Upcoming HCCA Events
  • Infrastructure Update
  • Policy and Research Update
  • Health Literacy Update
  • Chronic Conditions Network Update
  • Consumer Involvement and Representative Opportunities
  • Items of Interest
 

Upcoming HCCA Events

Writing Health Information Everyone Can Understand

Wednesday 30 October, 10am – 11am

Venue (Online via Zoom)

An informative online session on writing and reviewing health information to make it easy to read and understand. This session is for consumer representatives, health workers and anyone with an interest in health literate practice!

Learn more and register for Writing Health Information Everyone Can Understand on Humanitix.

Register on Humanitix
 

Infrastructure Update

First Impressions Project

We have been working on some wayfinding projects this fortnight. One of them is the 'First Impressions Project'. Some of you may remember this project because HCCA ran it a few years ago. We have restarted the project in 2024 in collaboration with Canberra Health Services Wayfinding and Accessibility Officer, Josie Khng.

The First Impressions Project asks consumers to visit specific sites and assess how easy it is to plan your journey, get into the facility and find your way to your appointment. The sites that will be visited are Canberra Hospital, Belconnen Community Health Centre, and Gungahlin Community Health Centre.

Thanks to the first round of consumers who completed their activities and given feedback! We will eventually write a report with the data collected from consumer research and site visits to inform the overall wayfinding strategy. In the meantime, we have been working with Josie to track suggestions for more short-term improvements we hope to see implemented.

Advice for North Canberra Hospital

Recently Darcy and Kate met with Megan Curran, the Executive Director of Critical Care at North Canberra Hospital. We took a tour around the Emergency Department (ED) and discussed the priorities and space constraints, and some of the problem areas for consumers in the North Canberra ED.

It was great to be able to draw on work we have previously done in other infrastructure projects. We’ve learnt a lot over the years about people’s needs when visiting the ED, and we’ve also documented consumer input on waiting spaces more generally in the hospital setting. On this occasion, we provided advice on improvements for privacy, acoustics, signage, health literacy and inclusion measures, amenities, areas for family and carers, children and people with low sensory needs.

In the long term there will be a new Emergency Department on the North Canberra Hospital site. In the short-medium term, we hope consumers can participate in design work to make the current Emergency Department more comfortable and functional for consumers and staff too.

If you would like to participate in health infrastructure work with HCCA or have some thoughts to share about health facility design, please email [email protected].

— Darcy
(Infrastructure Project Officer)

 

Policy and Research Update

Experiences of Older People with Behavioural & Psychological Symptoms of Dementia (BPSD) Project

The HCCA BPSD Project seeks to understand how people living with dementia, their families and carers access health care when living in a residential aged care facility (RACF).

HCCA would like to hear from:

  • people aged 60 years and above or 50 years and above for Aboriginal and Torres Strait Islander Peoples who:
  • Identify as having a diagnosis of dementia and have experienced BPSD;

AND 

  • Are living in a RACF in the ACT;

AND

  • Have presented to the Emergency Department or been hospitalised in the last two years;

OR

  • Family or informal carers of eligible residents.

Confidential conversations will be conducted by HCCA staff.

If you or someone you know might be eligible to participate, please contact Shivana Chandra at [email protected] or phone (02) 6230 7800.

The Project’s findings will be used to develop and improve access to health services to better meet the needs of people living with dementia, their families and carers. 

The HCCA BPSD Project is approved by the ACT Health Human Ethics Research Committee (approval number 2024.ETH.00080) and funded through the ACT Health Directorate.

— the Policy and Research team
(Jess, Stephen, and Shivana)

 

Health Literacy Update

Last Friday, Ivapene had the privilege of attending the 2-day Oceania Pacific Health Association (OPHA) conference, themed "Niu Ways Forward: Pasifika Health in the Digital Age." It was truly inspiring to be surrounded by Pacific health leaders from across Aotearoa New Zealand and Australia, including general practitioners, surgeons, nurses, psychologists, social workers, obstetricians, researchers, paediatricians, community leaders, climate change advocates, academics, nurses and global health experts in artificial intelligence, among others.

The conference highlighted the powerful force and strength of the Pasifika health network. The passion and commitment to improve better health outcomes for our pacific people in Australia was one of the highest priorities. The Pasifika network will continue their dedication to strengthen & protect the vā (sacred spaces between us) across sectors, cultural and geographical boundaries.

Pacific Perspective in "Occupational Therapy in Australia and Aotearoa New Zealand: Practice Perspectives and Process Issues"

In 2026, the third edition of "Occupational Therapy in Australia and Aotearoa New Zealand: Practice Perspectives and Process Issues" will be published. The team is looking for co-authors. Co-authors could be Pacific Islanders working as occupational therapists or occupational therapists who are working with Pacific Islanders in Australia.

This chapter will be the first to feature voices from Pacific Australians. It will address both the Australian and New Zealand contexts. It aims to become an important reference for helping non-Pacific people collaborate effectively with Pacific communities.

Read more about the project here: Seeking Pacific Occupational Therapists.

For more information and for any questions you have, please contact the lead project coordinator Marina Elisara on email: [email protected] 

Ivapene Seiuli (HCCA) and Marina Elisara (The Hummingbird) at the OPHA Conference

— the Health Literacy team
(C and Ivapene)

 

Chronic Conditions Network Update

We held our final ‘Managing Your Health’ Webinar of the year on the 3rd of October and it was a hit! The key topic for the evening was ‘ADHD and Executive Function in the Workplace’. I have now put the recording up on HCCA’s YouTube channel so if you would like to watch, you can!

Watch Here

— Michelle
(Chronic Conditions Network Coordinator)

 

Consumer Involvement and Representative Opportunities

Please visit Consumer Opportunities on the HCCA website to learn more about, and nominate for, any of the following opportunities.

 
HCCA Internal Opportunities
Online Consumer Participation Training

12pm – 2pm, Monday 11 and 18 November 2024

HCCA’s free online consumer participation training is running on Mondays 11 November and 18 November. This training helps you learn skills and information you can use to advocate for yourself and others, as well as how to be an effective health consumer representative. When you complete this training and become a HCCA member, HCCA can endorse you for consumer representation opportunities.

Learn more and register for Consumer Participation Training on Humanitix.

 
Other Opportunities
ANU Cancer Research Information Session – Contribute as a Consumer Representative

Date: Wednesday, 20th November 2024

Are you interested in contributing to cancer research? The cancer research team at ANU, led by Associate Professor Marian Burr, are hosting an informal information session over morning tea for consumers who have been impacted by cancer to form a consumer representative committee to provide input into the planning and sharing of our research.

Who is eligible to attend?
This session is open to:

  • People who have or have had any type of cancer.
  • Carers of individuals who are currently or have been affected by cancer in the past.
  • Anyone interested in cancer research who would like to share their experiences and contribute to improving cancer treatment.

During the session, you’ll have the chance to tour the lab, meet the research team, ask questions about their work, and provide valuable input into the planning and sharing of cancer research.

Download the event information document for more details and RSVP information

 

Items of Interest

The Positive Ageing Awards

Closing date: Sunday 3 November

Ceremony date: Wednesday 20 November.

The Positive Ageing Awards highlight the importance of aged care, education and resourcefulness, outstanding service for seniors, diversity, social justice and advocacy and resilience and contribution within the senior community.

Why not show someone the impact they’ve made by nominating them for an Award?

Certificates are provided for all nominees and winners receive a custom prize.

Find out more or nominate here: https://cotaact.org.au/events/awards/ or call the COTA ACT office on 6282 3777. (Both online form and downloadable/hardcopy form available)

Supporting Choice for Cervical Screening research project

Regular cervical screening is crucial for preventing cervical cancer. Australia has recently updated its cervical screening options to improve accessibility.

The Supporting Choice for Cervical Screening research project aims to improve the way that cervical screening options are offered to and accessed by people who face additional challenges. They are hosting 2-hour workshops to set research priorities.

Who Can Participate?

  • Women and anyone with a cervix from priority groups in Australia, including:
    • Refugees and asylum seekers
    • People with physical and/or sensory disabilities
    • LGBTQ+ and intersex communities
    • Individuals of Pacific Islander or South Sea Islander heritage

What to Expect:

  • Participate in a 2 hour online or in-person workshop to help shape research priorities.
  • Participants will be reimbursed for their time.

To express your interest, click here to register.

This initiative is led by the University of Melbourne, The Daffodil Centre, and the Kirby Institute.

 
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**FREE interpreter services available over the phone via the Australian Government’s Translation and Interpreting Service (TIS) on 131 450**

© 2024 Health Care Consumers' Association Inc, All rights reserved. Edited by Darlene Cox.

Our phone number is:
02 6230 7800

Consumer Bites is the newsletter of the Health Care Consumers' Association. Consumer Bites provides a small snippet of health related articles our members might find interesting to consider and analyse. The HCCA does not endorse any opinions or the claims contained within the articles.

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